Health and health related quality of life of children living with HIV infected parents
Keywords:
HIV, Peds QL, HRQOL, Social and school domain
Abstract
OBJECTIVE: To study the health and health related quality of life of children living with HIV infected parents using Pediatric Quality of Life Inventory (PedsQL) ™ 4.0 Generic Core Scales. METHODS:The study was conducted from January 2013 to October 2014 at S.N.Medical College, Agra , ART centre and pediatrics OPD. The Pedsql generic core version 4.0 was administered to 300 children in the age group of 8-18 years living with HIV infected parents and 300 controls who visited the pediatric OPD for minor ailments.RESULTS:In this study it was found that children living with HIV infected parents had lower mean weight(26.89 vs 30.76 kg), height(1.09 vs 1.35metres) and body mass index (15.73 vs 17.16) compared with controls.The percentage of children not attending the school for more than six months was also significantly higher in the study group ( 32% vs 15% in controls.Their Pedsql scores were lower in emotional, social and school domains as compared with the controls.CONCLUSION:These findings are along expected lines, it is vital to establish a baseline of socioeconomic and physical parameters of such children in Indian context. This knowledge is vital to plan a meaningful policy intervention and to measure its efficacy. These findings can guide in the development of future interventions that promote care and support of children living in HIV/AIDS affected families. we feel more such studies are required in future to realise the big picture. DOI: 10.21276/AABS.1532References
1. National Annual Report 2013-14.National Aids Control Organisation
Ministry Of Health And Family Welfare. Webpage www.naco.gov.in
2. Varni, J. Seid, M. Rode, C., 1999. The PedsQL: Measurement Model for the Pediatric Quality of Life Inventory. Medical Care, 37(2):pp. 126-139.
3. Xu, T. Wu, Z. Rou, K. Duan, S. Wang, H., 2010. Quality of Life of children living with HIV/AIDS-affected families in rural areas in Yunnan, Acahina. AIDS Care, 22(3):pp.390-396.
4. Sengendo, J. & Nambi, J. 1997. The psychological effect of orphanhood: a study of orphans in Raika district. Health Transit. Rev., 7(Suppl.): 105–124
5. Rotheram-Borus MJ, Draimin BH, Reid HM, Murphy DA. The impact of illness disclosure and custody plans on adolescents whose parents live with AIDS. AIDS. 1997;11:1159–1164
6. Chinqing Lin, Li Li, Alan Semaan , 2008 Children’s body mass index and nutrition intake in HIV/AIDS.Vulnerable Child Youth Stud, 3(1): 16–23.
7. Fang X, Li X, Stanton B, Yan Hong Y, Zhang L, Zhao G, Lin D. Parental HIV/AIDS and psychosocial adjustment among rural Chinese children. Journal of Pediatric Psychology. 2009; 34(10):1053–1062. [PubMed: 19208701]
8. Wild J. The psychological adjustment of children orphaned by AIDS. Southern African Journal of Child and Adolescent Mental Health. 2002; 13:3–22
Ministry Of Health And Family Welfare. Webpage www.naco.gov.in
2. Varni, J. Seid, M. Rode, C., 1999. The PedsQL: Measurement Model for the Pediatric Quality of Life Inventory. Medical Care, 37(2):pp. 126-139.
3. Xu, T. Wu, Z. Rou, K. Duan, S. Wang, H., 2010. Quality of Life of children living with HIV/AIDS-affected families in rural areas in Yunnan, Acahina. AIDS Care, 22(3):pp.390-396.
4. Sengendo, J. & Nambi, J. 1997. The psychological effect of orphanhood: a study of orphans in Raika district. Health Transit. Rev., 7(Suppl.): 105–124
5. Rotheram-Borus MJ, Draimin BH, Reid HM, Murphy DA. The impact of illness disclosure and custody plans on adolescents whose parents live with AIDS. AIDS. 1997;11:1159–1164
6. Chinqing Lin, Li Li, Alan Semaan , 2008 Children’s body mass index and nutrition intake in HIV/AIDS.Vulnerable Child Youth Stud, 3(1): 16–23.
7. Fang X, Li X, Stanton B, Yan Hong Y, Zhang L, Zhao G, Lin D. Parental HIV/AIDS and psychosocial adjustment among rural Chinese children. Journal of Pediatric Psychology. 2009; 34(10):1053–1062. [PubMed: 19208701]
8. Wild J. The psychological adjustment of children orphaned by AIDS. Southern African Journal of Child and Adolescent Mental Health. 2002; 13:3–22
Published
2017-07-11
Issue
Section
Original Article
Authors who publish with this journal agree to the following terms:
- Authors retain copyright and grant the journal right of first publication with the work simultaneously licensed under a Creative Commons Attribution License that allows others to share the work with an acknowledgement of the work's authorship and initial publication in this journal.
- Authors are able to enter into separate, additional contractual arrangements for the non-exclusive distribution of the journal's published version of the work (e.g., post it to an institutional repository or publish it in a book), with an acknowledgement of its initial publication in this journal.
- Authors are permitted and encouraged to post their work online (e.g., in institutional repositories or on their website) prior to and during the submission process, as it can lead to productive exchanges, as well as earlier and greater citation of published work (See The Effect of Open Access).
